Useful Links
Parenteral Nutrition
BAPEN – British Association of Parenteral and Enteral Nutrition – Putting patients at the centre of good nutritional care – www.bapen.org.uk
PENG – Parenteral and Enteral Nutrition Group – Promoting excellence in nutrition – http://www.peng.org.uk
ESPEN – European Society for Clinical Nutrition and Metabolism – http://www.espen.org
PINNT – Patients On Intravenous & Nasogastric Nutrition Therapy. A support group for people receiving artificial nutrition – www.pinnt.com
BDA – British Dietetic Association. The Association of UK Dietitians – www.bda.uk.com
BPNG – The British Pharmaceutical Nutrition Group – Feeding information to Pharmacy – www.bpng.co.uk
NNNG – National Nurses Nutrition Group – Promoting education in nutrition – www.nnng.org.uk/
NCHA – National Clinical Homecare Association – to represent and promote the patient-led interests of specific organisations whose primary activity is to provide medical supplies, support and clinical services to patients in the community – https://www.clinicalhomecare.org/
Other IV therapies
PID UK – Supporting families affected by primary immunodeficiencies – http://www.piduk.org/
Genetic Disorders UK – Improve the lives of individuals and families affected by genetic disorders – http://www.geneticdisordersuk.org
IPOPI – The International Patient Organisation for Primary Immunodeficiencies – http://www.ipopi.org/
CF – Cystic Fibrosis Trust. Fighting for a life unlimited – www.cysticfibrosis.org.uk
UK CFGTC – UK Cystic Fibrosis Gene Therapy Consortium – http://www.cfgenetherapy.org.uk/
OPAT – British Society for Antimicrobial Chemotherapy, at the forefront of antimicrobial chemotherapy – http://bsac.org.uk/
Biosimilars
NRAS – National Rheumatoid arthritis society) – provides information and support services for those affected by rheumatoid arthritis (RA) – https://nras.org.uk/
CICRA – Crohn’s In Childhood Research Association) – supporting better lives for children with crohns and colitis https://www.cicra.org/
Crohn’s and Colitis UK – support for people living with crohns and colitis –https://www.crohnsandcolitis.org.uk/
Skin Health Info – Advice for people living with skin conditions – https://www.skinhealthinfo.org.uk